Why Is Our Nation So Far Behind in Grief and Bereavement Services and Policies?

Why Is Our Nation So Far Behind In Grief and Bereavement Services and Policies?

National Grief Awareness Day — observed annually on August 30 —  was created by Angie Cartwright, who’s experienced immense grief in her life after the loss of her baby sister, newlywed husband, and mother. She helped establish this day of awareness in 2014, coinciding with her mother’s birthday, to encourage open and honest communication centering the myriad ways we cope with loss and bereavement, and to remind us all to support the people we know who are grieving. 

“Grief is the unique emotional response following the death of someone meaningful in your life,” says Evermore founder Joyal Mulheron. “It’s a term commonly used for anyone grieving a difficult change, like grieving our old lives before Covid.”

Everyone will experience the loss of a loved one at some point in their life, and this loss is seldom easy to accept or process. Each individual will experience grief differently, and unpredictably — it can wax and wane, reemerge at unexpected times, and linger longer than we’d like.

Coinciding with the grief process is bereavement — “the death event and surrounding systems, policies, and interactions that people experience in the aftermath of losing someone,” says Mulheron. “Bereavement includes the interactions a grieving person may have with institutions and people.”

Bereavement and grief are terms that are often used interchangeably, but their meanings are distinct. Although they can work in tandem, they are dealt with differently. 

For example, if a mother loses her child, she must not only navigate the emotional toll of her loss, but potentially do so with limited time off of work, because federal policy for bereaved parents only requires two weeks of paid leave for bereaved individuals. 

In this way, the feelings of anguish and sorrow that come with grief can make the bereavement process tumultuous, overwhelming, or disorienting. And vice versa. But understanding the difference between grief and bereavement can help people navigate a complex, often difficult coping process.  

While the unexpected or untimely death of a loved one is one of the most common traumatic events Americans experience, the journey through these events often remain invisible due to a lack of awareness about how policy decisions and institutional processes impact grief and bereavement. 

Researchers and policy-makers have long overlooked questions and statistics around bereavement. The Centers for Disease Control and Prevention (CDC), the largest monitor of health and wellness in the US, collects data on mortality events but overlooks the residual impacts — systemic, physical, and emotional — on surviving family and friends after a death event.

Bereavement has so little institutional support behind it, yet people can encounter these system deficiencies almost everywhere — the workplace, law enforcement interactions, the child welfare system, schools, federal benefits, health care, and housing. This neglect has created a public health problem with profound implications for the social and economic well-being of families, communities, and the nation as a whole.

For instance, when a child experiences the premature death of a parent, it can be difficult to find a qualified therapist or suitable in-school counselor. When compared to non-bereaved children, bereaved children experience lower self-esteem, lower grades, and more school failures, along with the heightened risk of depression, suicide, and premature death.

Individuals who are exposed to death at early ages are more vulnerable to negative social and health outcomes for the rest of their lives. These experiences cause greater cumulative disadvantages, induce greater levels of stress, and deplete financial resources.

For Indigenous, Black, and Latino people, and also people experiencing poverty, these deficiencies in our public and private systems have a disproportionate negative effect, creating additional challenges for the nation’s most vulnerable families for years following the loss of a loved one.

At Evermore, we believe bereavement care in America is broken. Which is why we’re committed to shifting policy and bringing more awareness to these issues — and how they impact real families — so that grieving can happen more naturally and loved ones can support when they need it more than ever.

 

Additional Resources

With Teacher Shortages, Community Programs for Grieving Kids Are More Important Than Ever

With Teacher Shortages, Community Programs for Grieving Kids Are More Important Than Ever

With the back to school season in full swing, all of us with students in our homes have probably heard about the critical shortage of teachers. Reports say that our country lacks a whopping 300,000 teachers and support staff. 

 

In an interview with ABC News, Becky Pringle, the president of the National Educators Association, said, “We know that this has been a chronic problem. This is not new. We have been sounding the alarm for almost a decade and a half that we have a crisis in the number of students who are going into the teaching profession and the number of teachers who are leaving it.”
 
This shortage should come as no surprise though. Pringle raises an important point – our country has placed so many burdens on educators over the years, and with all things, the pandemic has exacerbated the problem. 
 
She said,”The concerns that our educators and parents have raised, which are playing out, [and] played out last year… is that we had to double-up classes.[Also] we had to not necessarily offer the special education services that our special education students need. We knew that there were too many educators who were overwhelmed by the number of students that they were trying to meet the individual needs of, and we don’t have enough substitutes.”
 
Considering everything that has been forced onto educators’ plates, adding unofficial grief counseling seems likes a bridge too far. Adding more under-resourced tasks to their already hefty workload, is not an approach our country can afford to take. It sets up students to not get the adequate support they need to be academically ready and it puts even more of a burden on the leaders in our classrooms.
 
When I read articles about the teacher shortage, it makes me commit even more to the work we are undertaking at Evermore – building communities to address the impact of childhood bereavement. We are working to uplift community projects across the country.

The Time Is Now to Invest in Grieving Young People

The Time Is Now to Invest in Grieving Young People

Recently, NPR covered a fascinating club for teenage students experiencing the death of a parent. The article follows the story of a high school sophomore named Elizabeth,  whose father passed from COVID-19 last year.  More than anything, this reporting shows that the time is now to invest in community-centered programs for grieving young people and that our approaches should include all children experiencing grief.

 

Elizabeth George-Saul Martinez for NPR

Elizabeth George, 15, was a freshman in high school when her father died from Covid-19 last October. Since his death, she has struggled to regain a sense of normalcy. “I have difficulties even going [out] with my friends,” she says. “I just want to sleep at home.”

Rhitu Chaterjee writes, “His death turned Elizabeth’s world upside down. In the weeks that followed, she found herself not wanting to leave her house. ‘I didn’t want to go to school,’ she says. ‘I just wanted to stay at home.”

It’s important to point out that children, unlike adults, have to continue to go to school. There is no pause or time off for them. Sometimes, these children simply fall behind in school and in life because  they are often facing compounding instability at home. Some lose their housing, experience food insecurity, loss of health care coverage among other hardships. Children who seek post-secondary education opportunities face enormous academic stressors — like how grades will impact their path to college or how they will pay for it. We believe no child should face these hardships. 

 

Chaterjee continues: “Losing a parent in childhood is the kind of trauma that can change the trajectory of kids’ lives, putting them at risk of having symptoms of anxiety, depression, post traumatic stress and even poor educational outcomes.”

 

To be frank, this is an understatement and scratches the surface at the impact of childhood bereavement. Childhood bereavement experts have found that when compared to non-bereaved children, bereaved children are at risk of “lower self-esteem, reduced resilience, lower grades and more school failures, heightened risk of depression, suicide attempts, suicide [completions], and premature death due to any cause as a result of their loss, drug abuse, violent crime involvement, youth delinquency, and a greater number of, and more severe, psychiatric difficulties.”

 

Keanna Tyson holds on to her backpack during a group session at Steve’s Club in Atlantic High School. The Club meets every twice a month to talk about what they are going through.
Saul Martinez for NPR

Please check out the full article and let us know what you think. We have a long way to go to address the needs of bereaved children, but it’s encouraging to know that we are not alone in this fight!

Calling All Working Parents! Congress Is Listening

Close the Loophole! – Universal Paid Leave Should Include Bereavement Leave

Due Monday, August 15th!

Earlier this year, you made phone calls, sent emails, called your friend in order to add paid bereavement leave to our nation’s policy conversations. You did it and it was the first time Washington included paid bereavement leave to its paid leave agenda, an amazing accomplishment.

In classic Washington fashion, however, Congress passed a law that provides two weeks of paid leave for the death of a child, but only if you are a federal employee. While it’s a step forward, we believe that all employees deserve the confidence to know that they will not be fired in the aftermath of losing someone they love. 

So, what now?

Today, the average American can be fired for not showing up to work the day after their child – or spouse, or domestic partner, or a parent, or a sibling – dies. And, it’s perfectly legal. 

We must close this loophole as millions of Americans are grieving the deaths of loved ones. With concurrent mortality epidemics raging across the United States, we must act now to ensure everyday Americans, like me and like you, have the ability to take paid leave following a loss. 

For the next two weeks, Congress is accepting stories from parents who have experienced challenges due to the lack of “universal paid leave.”

They need to hear from you NOW! 

Here’s how:

    1. You can submit one of the following: 
      • Short video (30 – 90 seconds);mp4 format; filmed horizontally if possible OR 
      • Photo with caption OR
      • Written piece. 
    2. Email your story to shareyourstorywaysmeans@gmail.com. Include your name, what you do for a living and any social media tags. 
    3. Tag them on Facebook and Twitter at:

Then, spread the word! This can only be done by YOU. We must ACT NOW to ensure that everyday grieving Americans aren’t left behind.

Let your voice be heard. 

Learn more about how you can share with others and be the change: https:///waysandmeans.house.gov/share-your-story-paid-leave-and-child-care

Become Part of the Solution to America’s Bereavement Crisis

 

I am one of those newly bereaved Americans with two empty chairs at our dinner table this year, but I am far from alone. We are a nation in mourning and no one is exempt. With more than 765,000 deaths from COVID-19 alone and multiple mortality epidemics from overdose, suicide, homicide, maternal mortality, mass murder events, and impending disasters from climate change, death, grief, and mourning are raging in every community and touching most hearts in America.

We must say: You’re not alone. We will not allow the quicksands of grief or injustice to swallow you. I will stand next to you. I will outstretch my hand and hold you tight.

So, what can you do?

 

New Documentary Spotlights Grief and How to Talk About It

The creators behind a new documentary set to air on public media channels across the country in May want to start a national conversation about a topic that many shy away from — grief.

The goals for “Speaking Grief” are twofold: to validate the experience of grief through the stories of those mourning the death of family members and also to make it easier for the rest of us to support the grieving.

So many times, says Lindsey Whissel Fenton, the senior producer at WPSU who is producing, directing, and writing the documentary portion of the multiplatform Speaking Grief initiative, friends, neighbors and coworkers want to support those who are grieving a death, but don’t know what to say or do or how to help.

“People are left without tools and, unfortunately, that often leads to them disappearing because they fear saying the wrong thing or because they feel ill-prepared,” she says. “We felt the biggest value we could add was to help educate people who find themselves in a support role. We wanted to address those feelings of discomfort by giving them a basic understanding of grief as well as suggestions for how to go about offering support, so they can show up for their people even when they feel uncomfortable.”

 

Universal interest

Although Fenton has experienced death-related loss, there was no single, life-defining personal experience that spurred Fenton to make “Speaking Grief,” though, she said, many people assume she must have a profound grief story that sparked her interest in the topic. A now-retired colleague, Patty Satalia, originally came up with the idea years ago, and it took a while to gain traction.

But people’s assumption that a personal loss story is the only reason Fenton would focus her creative efforts on a topic so many would prefer not to broach is telling, Fenton says. “What is interesting is that people come at this with the assumption that somebody would only care about grief if they are directly affected by it.”

In reality, she said, we all will struggle with grief at different points in our lives — and we all will grapple with how to help a close friend or family member who is mourning a death.

“Eventually, it will affect all of us,” she says. “And even if you haven’t personally experienced it yet, it’s something we all have a stake in and need to get better at.”

Different places, varied experiences

The hour-long documentary, produced by WPSU Penn State and distributed by American Public Television (APT), highlights a collection of people from across the country who are grieving a family member’s death. “We wanted to show people who are at different places in the grief journey in terms of when the death occurred,” Fenton says.

Some have just experienced a death in the past year or two. For others, it’s been longer. Either way, Fenton wanted to demonstrate that grief is an ongoing experience — not some one-and-done process with a finite timeline.

At the same time, the documentary highlights different kinds of losses as well — a son who died in a car accident, a boy and his grandmother who died in a fire, a stillborn baby, a husband and father who died from brain cancer — to illustrate how those experiences can shape the grief experience.

Throughout the documentary, Fenton uses commentary from grief professionals to provide some clarity to the themes featured in each of those personal stories — such as explaining how children grieve in unexpected ways and why secondary losses, like when friends or family vanish because they don’t know how to provide support, occur.

“When you realize what people go through in addition to the actual death event, it’s shocking and sometimes difficult to hear,” Fenton says. “On top of losing someone you love, you experience all of this other loss. You experience the loss of friends, the loss of financial security. All of these things that you might not realize if you haven’t gone through this type of experience yourself.”

Bringing all together

“Speaking Grief” is a multi-platform project that also includes social media campaigns via Facebook and Instagram and a website that will feature a growing number of personal stories, videos and resources. The film’s trailer was released in January.

Just the launch of the trailer has already generated positive feedback from people from around the world, says Cassie Marsh-Caldwell, project manager. “The amount of people who just simply took the time to email and tell us a little bit about their own personal story and say thank you” was surprising, she says. So were the groups who reached out — grief organizations, along with nursing colleges, educators and funeral directors, among others.

Plans originally included in-person premiere events in April though those plans have changed because of the need for social distancing during the coronavirus pandemic. Public media stations across the country also are scheduling broadcast dates for “Speaking Grief” starting in May and continuing throughout the year.

Fenton is hopeful the documentary and web content will bring together both those who are grieving and those who are seeking to support them, providing a safe space for each group to learn from the other.

“It can be a very emotional space, but we want to create the kind of dialogue where people can ask questions and not be afraid to make a blunder in the interest of learning, so maybe the next time they are confronted with grief, they can feel a little bit more prepared,” she says. “We need everybody to engage in this and think about the role they can play in helping all of us get better at grief.”