Three Very Different (Yet Similar) Stories of Pregnancy and Infant Loss

Since October is Pregnancy and Infant Loss Awareness Month – which aims to bring more acknowledgement and recognition to the grief, stress, and hardship parents experience after a miscarriage or the death of a newborn baby – we decided to share three stories of loss to contextualize this unique, and challenging maternal experience. 

According to the Centers for Disease Control and Prevention (CDC), approximately 20,000 infants died in the U.S. in 2020 before their first birthday – that’s approximately 542 deaths for every 100,000 live births. Another 24,000 babies are stillborn in the U.S. each year. When taken collectively, the annual incidence of stillbirth and infant deaths is approximately equivalent to the number of deaths by suicide. Not to mention that as many as half of all pregnancies end in miscarriage. 

“It is an underappreciated and often unrecognized type of loss, particularly for mothers,” says Evermore founder Joyal Mulheron. “Like other forms of loss, miscarriage or the loss of an infant can often create compounding hardship and accumulating stress for the parents. However, over recent years, these losses are receiving increasing attention.”

Hollywood has produced at least two notable films on pregnancy loss. “Roma,” which swept the awards circuit, and “Pieces of a Woman,” which earned Vanessa Kirby a nomination for best actress from the Academy Awards. Both films contribute to the growing recognition that these losses are deserving of social and legal support.   

We sat down with both Vanessa Kirby and Academy Award-winning actress Ellen Burstyn, who both starred in the 2020 film, “Pieces of a Woman.” The film follows Martha, a young mother whose life changes irrevocably when her home birth ends in an unimaginable tragedy — her baby is stillborn. Played by Kirby, Martha is forced to navigate difficult relationships with loved ones — and her own emotional journey — as she learns to live with the grief of losing her baby. 

https:///youtu.be/fq9qnZXzI0c

“Whatever Martha’s feeling is unknowable to everybody else, and as much as she needs and wants to reach out to other people, I think it’s so colossal that she doesn’t know how,” says Kirby. “I think that’s the frustration that people around her feel, that they can’t get in touch with where she’s gone. Because I think even she doesn’t know.”

As seen in the film, a miscarriage or stillbirth can be a very personal experience — one that can be hard to communicate to anyone who hasn’t experienced it themselves. Although this grieving journey is unique for every mother, there’s often a feeling of isolation for mothers who experience the death of their babies.

“Even though this is a deeply painful movie, we kind of hoped that it would make people feel less alone with the magnitude and the solitary nature of deeply grieving someone,” says Kirby. “The nature of it is having to go through it alone, having to navigate through time, space, and reality, when your reality is completely different and has been shattered. You have to pick up the pieces and try and reform them.”

“Pieces of a Woman” breathes new life into this complicated issue and exposes viewers to an authentic account of the internal and external experiences that mothers must face after losing a baby.

In addition to the emotional toll of such losses, losing a pregnancy or infant is often physically taxing for women, who may experience pain and discomfort from pregnancy loss, or the toll of labor and delivery, only to be followed by the grief of losing a child whose arrival had been joyously anticipated. 

Gina Mathias, who lives in Maryland, couldn’t escape the feeling of guilt after her experience with stillbirth. She felt personally responsible for the death of her son — after all, she’d been carrying him and felt she should have been able to feel if there had been complications with her pregnancy. 

https:///youtu.be/kq5-8QjhNVY

“Ultimately, I was the only person responsible for Forrest’s life,” says Mathias. “At the end of the day, I was his mother and I was supposed to protect him.”

Miscarriages and stillbirths are often unexpected and unexplained, which can leave mothers and their families with an ambiguous loss to grieve, and with few answers for why the loss occurred. 

“It’s really hard living with not knowing why your child died,” says Mathias. “If there was something that you did wrong, if there was something you could have done to prevent it.”

To further complicate the experience, many medical providers are not trained or equipped to aid mothers and their families with the nuanced, emotional challenges of miscarriage, stillborn death, and the death of an infant. 

After Mathias’ stillbirth, she was brought to the maternity ward with other birthing mothers. “All around us we could hear other women giving birth and their crying babies,” says Mathias. “And that was just too much.”

Recent data from the CDC show that the U.S. infant mortality rate has continued to disproportionately impact Black women and their families. In 2020, the infant mortality rate for Black babies was nearly 11 deaths for every 1,000 live births, which is double the rate for White babies. 

Although it happened more than 30 years ago, the stress and pain of losing two children is still a fresh wound for Jackie Williams, a Black woman and bereavement doula who lives in Maryland.

https:///youtu.be/hQMKizr5LhA

“It’s like a wound that you’ve put a little dirt over, but if a strong wind blows, it’ll blow the dirt away and that wound is resurfaced,” says Williams. “On the dark days, I felt really alone and I felt as though, with [my daughter] Carolyn, I blamed myself for her death for years and years.”

Williams was 20 years old when she lost Carolyn only about five months after her birth. This experience was devastating for a young mother with little access to resources, and Jackie says she became so consumed with the death of her daughter that she began to contemplate taking her own life. 

“At that point, that was my lowest,” says Williams. “I wondered — if I take enough pills, I could just die without any pain. Because I wanted to die, but I didn’t want to hurt.”

Williams struggled for years with the grief and pain of losing her daughter until she made the decision to seek out a therapist. The pure act of being able to talk with someone about her experience provided her with the support she needed to begin her healing journey. 

Although therapy helped change the trajectory of Williams’s life, there is still much more that can be done to improve the support and care for women who are grieving the loss of a child. 

“The deep bonds of motherhood do not simply stop when your child dies,” says Mulheron. “It’s not uncommon for mothers to want to continue parenting their child in death too. This is why we are working to expand legislation and develop other tools to support mothers and families in the aftermath of loss. The nation is woefully behind and there is a lot more work to do.” 

Can Working with a Medium Help You Connect With a Lost Loved One?

Jena Kirkpatrick with her son, Ellis McClane.

Jena Kirkpatrick was hesitant to visit a medium after experiencing the death of her 19-year-old son, Ellis McClane, who died in a car accident in 2011. But five years after her loss, Jena decided to take a chance and scheduled an appointment. 

“That’s something everyone wants for the people who have passed — to talk to them again,” says Kirkpatrick, who also works at Evermore coordinating communications and outreach. 

However, Jena felt uncomfortable during her reading. She was keen to the medium’s overly zealous attempts to know her son, and she struggled to make connections between the medium’s messages and her personal experiences. At one point, the medium told her Ellis had become frustrated because she wasn’t catching the references in the messages he was sharing.

“It hurt my feelings,” says Kirkpatrick. “I let myself be vulnerable in the situation, and then I felt a little pissed off that the medium hurt my feelings because I didn’t understand his message. … I just wanted to hear that my kid loves me and he’s okay.”

Psychic mediums claim they can receive messages from the spirits of people who’ve passed on and can act as channels between those who have died and their surviving loved ones. This is why psychic mediums can be an attractive choice to aid in the grieving process. However, every psychic reading is a unique experience — some leave grieving loved ones in more pain and distress, while others provide a deep sense of spiritual connection.

For her part, Kirkpatrick was undeterred by her disappointing experience and decided to reach out to another medium, this time a friend who was beginning to share her clairvoyant gifts with others. To Kirkpatrick’s utter delight, this reading experience was much different. 

“We did a couple of readings, and they were phenomenal,” says Jena. “It was much more positive. I felt like she was a lot more kind and empathetic and really took [the reading] in this beautiful and spiritual way.” 

It was in this reading Jena finally received the message she had been yearning for — her son is always with her. Jena already had a strong sense that she was receiving messages from Ellis — she sees him in her dreams and often encounters butterflies while in nature — but now she had more reason to believe she really was hearing from her son regularly, in various ways.

“He said, ‘I can always be with you because I’m everywhere, Mom,’” says Jena. “I am always watching out for you, and when you hear me talking to you, it truly is what I’m saying.”

The permanency of losing a loved one can be one of the most perplexing parts of coping with death. It can be unfathomable to accept that you will never speak with your loved one again. This may be one reason why so many people choose to work with mediums after experiencing the death of a loved one, as suggested by research. 

A 2012 study found that grieving parents reported finding support groups and psychics as the most helpful coping methods in their grief. The same study also found that about 30 percent of grieving parents received a reading from a psychic within the first four years of their child’s death.

Furthermore, a 2014 study revealed that grieving people experienced less intense grief after a psychic reading when compared to a visit with a mental health professional.

The Szewcyzk family.

Barbara and Walt Szewcyzk visited multiple psychic mediums for readings following the death of their son, Alex Szewcyzk. Alex died by suicide five years ago in their home after years of struggling with his mental health and alcohol use. 

Almost immediately after his death, Barbara began to feel as though Alex was still communicating with the family. As they gathered around the kitchen table to discuss funeral arrangements along with Walt’s sister, Barbara suddenly got the feeling that Alex was not a fan of the lavish service they were putting together. Moments later, Walt’s sister’s phone began randomly playing the popular ballad, “Hello” by Adele, even after being turned off. 

Barbara took this as a sign from Alex, and soon after, she decided to see a psychic medium.  

“I got there, and she started talking about Alex,” says Barbara. “She described his death, and she wouldn’t have known, she couldn’t have known. She gave me a lot of insight and I left there [feeling] pretty comforted.” 

Barbara was able to find the confirmation she had been looking for — that Alex was always around her, watching over her. 

As she watched her husband struggle with the death of their son, and in an attempt to aid her family through their grieving process, Barbara encouraged Walt to speak with the same medium that provided her initial reading. Walt told Barbara he would trust her, and she booked him an appointment.

“He said to me, ‘I just wish Alex had given me a letter. I just wish he had explained to me what was going on,’” Barbara says of a conversation she had with her husband shortly before his visit with the medium.

Much like Jena Kirkpatrick, Walt had his reservations. His religious upbringing and scientific training made him question the legitimacy of psychic readings. He also worried about the medium’s credibility and authenticity. But after finding himself lost after the death of his son, Walt decided to be open to the possibilities. 

During his reading, the medium presented Walt with a letter written with words she channeled from Alex — the letter Walt had always wished he had received from his son after his passing.

“The experience with the medium blew my mind,” says Walt. “I felt wonderful after I left [the appointment]. It reinforced that something is here, and that led me to an organization called DOPS.”

DOPS, or the Division of Perceptual Studies at the University of Virginia, is a “university-based research group devoted to the investigation of phenomena that challenge mainstream scientific paradigms regarding the nature of human consciousness,” according to their website. The research team at DOPS seeks to explore human experiences that may provide evidence that consciousness does survive a bodily death. 

“When you tie that in — science with real life experience — you really find that there is something there,” says Walt. “Life does exist and there is a realm around us that we can’t see because of our physical limitations.”

To others curious about whether they should see a medium to connect with a loved one who’s passed on, Walt suggests really looking into the messages that the medium provides, not forcing yourself to make connections where they don’t exist, and being open to a new reality that may call into question your current convictions.

“These mediums — the genuine ones that can bridge that gap — can provide not just healing for those who are grieving, but a renewal of an individual’s consciousness and help them grow,” says Walt. “My grief has been transformed into an energy that drives me to be a better human being. One that I think is truly rooted in the message of Christ.”

Yanie Brewer is a psychic who visits with hundreds of people like Walt and Barbara as part of her work. She says she’s been able to see and hear the spiritual world since birth. At the age of three, Yanie was nearly legally blind. As a result, she could see more of the spiritual world than her own earthly reality. As she got older, it seemed only natural that she uses her intuitive gifts to help others. 

“It’s very healing because, on the other side, people only tell the truth,” says Brewer. “It can be very healing for people to understand that their loved ones still have life on the other side.”

Yanie advises people not to let one “bad reading” ruin the opportunity to connect with a loved one. Andrew Witt, who also works as a psychic agrees, and recommends that people seek out multiple readers to find someone they can connect with. 

Witt also stated that the quality of a reading can largely depend on the beliefs, expectations, and openness of those seeking answers. He added that it’s also important to work with the medium during the reading to get confirmation that the connection is happening with the spirit of the intended person.

“Nothing that comes from spirits is judgmental,” says Witt. “[The messages] are always very respectful and always very empowering. If [the reading] doesn’t meet those criteria, then that’s something that’s not the real deal.”

Working with a medium after the death of a loved one is a personal choice — one that should only be made when it feels right for you, and if you feel ready to try the experience. If you know friends who’ve worked with mediums, you might first ask them to refer you to someone they’ve had a positive experience with. 

Before scheduling an appointment, check out the medium’s website or social media presence to explore whether you feel connected to the person. When you identify a medium that feels like a good match, go in with an open mind and heart.

Why Is Our Nation So Far Behind in Grief and Bereavement Services and Policies?

Why Is Our Nation So Far Behind In Grief and Bereavement Services and Policies?

National Grief Awareness Day — observed annually on August 30 —  was created by Angie Cartwright, who’s experienced immense grief in her life after the loss of her baby sister, newlywed husband, and mother. She helped establish this day of awareness in 2014, coinciding with her mother’s birthday, to encourage open and honest communication centering the myriad ways we cope with loss and bereavement, and to remind us all to support the people we know who are grieving. 

“Grief is the unique emotional response following the death of someone meaningful in your life,” says Evermore founder Joyal Mulheron. “It’s a term commonly used for anyone grieving a difficult change, like grieving our old lives before Covid.”

Everyone will experience the loss of a loved one at some point in their life, and this loss is seldom easy to accept or process. Each individual will experience grief differently, and unpredictably — it can wax and wane, reemerge at unexpected times, and linger longer than we’d like.

Coinciding with the grief process is bereavement — “the death event and surrounding systems, policies, and interactions that people experience in the aftermath of losing someone,” says Mulheron. “Bereavement includes the interactions a grieving person may have with institutions and people.”

Bereavement and grief are terms that are often used interchangeably, but their meanings are distinct. Although they can work in tandem, they are dealt with differently. 

For example, if a mother loses her child, she must not only navigate the emotional toll of her loss, but potentially do so with limited time off of work, because federal policy for bereaved parents only requires two weeks of paid leave for bereaved individuals. 

In this way, the feelings of anguish and sorrow that come with grief can make the bereavement process tumultuous, overwhelming, or disorienting. And vice versa. But understanding the difference between grief and bereavement can help people navigate a complex, often difficult coping process.  

While the unexpected or untimely death of a loved one is one of the most common traumatic events Americans experience, the journey through these events often remain invisible due to a lack of awareness about how policy decisions and institutional processes impact grief and bereavement. 

Researchers and policy-makers have long overlooked questions and statistics around bereavement. The Centers for Disease Control and Prevention (CDC), the largest monitor of health and wellness in the US, collects data on mortality events but overlooks the residual impacts — systemic, physical, and emotional — on surviving family and friends after a death event.

Bereavement has so little institutional support behind it, yet people can encounter these system deficiencies almost everywhere — the workplace, law enforcement interactions, the child welfare system, schools, federal benefits, health care, and housing. This neglect has created a public health problem with profound implications for the social and economic well-being of families, communities, and the nation as a whole.

For instance, when a child experiences the premature death of a parent, it can be difficult to find a qualified therapist or suitable in-school counselor. When compared to non-bereaved children, bereaved children experience lower self-esteem, lower grades, and more school failures, along with the heightened risk of depression, suicide, and premature death.

Individuals who are exposed to death at early ages are more vulnerable to negative social and health outcomes for the rest of their lives. These experiences cause greater cumulative disadvantages, induce greater levels of stress, and deplete financial resources.

For Indigenous, Black, and Latino people, and also people experiencing poverty, these deficiencies in our public and private systems have a disproportionate negative effect, creating additional challenges for the nation’s most vulnerable families for years following the loss of a loved one.

At Evermore, we believe bereavement care in America is broken. Which is why we’re committed to shifting policy and bringing more awareness to these issues — and how they impact real families — so that grieving can happen more naturally and loved ones can support when they need it more than ever.

 

Additional Resources

With Teacher Shortages, Community Programs for Grieving Kids Are More Important Than Ever

With Teacher Shortages, Community Programs for Grieving Kids Are More Important Than Ever

With the back to school season in full swing, all of us with students in our homes have probably heard about the critical shortage of teachers. Reports say that our country lacks a whopping 300,000 teachers and support staff. 

 

In an interview with ABC News, Becky Pringle, the president of the National Educators Association, said, “We know that this has been a chronic problem. This is not new. We have been sounding the alarm for almost a decade and a half that we have a crisis in the number of students who are going into the teaching profession and the number of teachers who are leaving it.”
 
This shortage should come as no surprise though. Pringle raises an important point – our country has placed so many burdens on educators over the years, and with all things, the pandemic has exacerbated the problem. 
 
She said,”The concerns that our educators and parents have raised, which are playing out, [and] played out last year… is that we had to double-up classes.[Also] we had to not necessarily offer the special education services that our special education students need. We knew that there were too many educators who were overwhelmed by the number of students that they were trying to meet the individual needs of, and we don’t have enough substitutes.”
 
Considering everything that has been forced onto educators’ plates, adding unofficial grief counseling seems likes a bridge too far. Adding more under-resourced tasks to their already hefty workload, is not an approach our country can afford to take. It sets up students to not get the adequate support they need to be academically ready and it puts even more of a burden on the leaders in our classrooms.
 
When I read articles about the teacher shortage, it makes me commit even more to the work we are undertaking at Evermore – building communities to address the impact of childhood bereavement. We are working to uplift community projects across the country.

The Time Is Now to Invest in Grieving Young People

The Time Is Now to Invest in Grieving Young People

Recently, NPR covered a fascinating club for teenage students experiencing the death of a parent. The article follows the story of a high school sophomore named Elizabeth,  whose father passed from COVID-19 last year.  More than anything, this reporting shows that the time is now to invest in community-centered programs for grieving young people and that our approaches should include all children experiencing grief.

 

Elizabeth George-Saul Martinez for NPR

Elizabeth George, 15, was a freshman in high school when her father died from Covid-19 last October. Since his death, she has struggled to regain a sense of normalcy. “I have difficulties even going [out] with my friends,” she says. “I just want to sleep at home.”

Rhitu Chaterjee writes, “His death turned Elizabeth’s world upside down. In the weeks that followed, she found herself not wanting to leave her house. ‘I didn’t want to go to school,’ she says. ‘I just wanted to stay at home.”

It’s important to point out that children, unlike adults, have to continue to go to school. There is no pause or time off for them. Sometimes, these children simply fall behind in school and in life because  they are often facing compounding instability at home. Some lose their housing, experience food insecurity, loss of health care coverage among other hardships. Children who seek post-secondary education opportunities face enormous academic stressors — like how grades will impact their path to college or how they will pay for it. We believe no child should face these hardships. 

 

Chaterjee continues: “Losing a parent in childhood is the kind of trauma that can change the trajectory of kids’ lives, putting them at risk of having symptoms of anxiety, depression, post traumatic stress and even poor educational outcomes.”

 

To be frank, this is an understatement and scratches the surface at the impact of childhood bereavement. Childhood bereavement experts have found that when compared to non-bereaved children, bereaved children are at risk of “lower self-esteem, reduced resilience, lower grades and more school failures, heightened risk of depression, suicide attempts, suicide [completions], and premature death due to any cause as a result of their loss, drug abuse, violent crime involvement, youth delinquency, and a greater number of, and more severe, psychiatric difficulties.”

 

Keanna Tyson holds on to her backpack during a group session at Steve’s Club in Atlantic High School. The Club meets every twice a month to talk about what they are going through.
Saul Martinez for NPR

Please check out the full article and let us know what you think. We have a long way to go to address the needs of bereaved children, but it’s encouraging to know that we are not alone in this fight!

Calling All Working Parents! Congress Is Listening

Close the Loophole! – Universal Paid Leave Should Include Bereavement Leave

Due Monday, August 15th!

Earlier this year, you made phone calls, sent emails, called your friend in order to add paid bereavement leave to our nation’s policy conversations. You did it and it was the first time Washington included paid bereavement leave to its paid leave agenda, an amazing accomplishment.

In classic Washington fashion, however, Congress passed a law that provides two weeks of paid leave for the death of a child, but only if you are a federal employee. While it’s a step forward, we believe that all employees deserve the confidence to know that they will not be fired in the aftermath of losing someone they love. 

So, what now?

Today, the average American can be fired for not showing up to work the day after their child – or spouse, or domestic partner, or a parent, or a sibling – dies. And, it’s perfectly legal. 

We must close this loophole as millions of Americans are grieving the deaths of loved ones. With concurrent mortality epidemics raging across the United States, we must act now to ensure everyday Americans, like me and like you, have the ability to take paid leave following a loss. 

For the next two weeks, Congress is accepting stories from parents who have experienced challenges due to the lack of “universal paid leave.”

They need to hear from you NOW! 

Here’s how:

    1. You can submit one of the following: 
      • Short video (30 – 90 seconds);mp4 format; filmed horizontally if possible OR 
      • Photo with caption OR
      • Written piece. 
    2. Email your story to shareyourstorywaysmeans@gmail.com. Include your name, what you do for a living and any social media tags. 
    3. Tag them on Facebook and Twitter at:

Then, spread the word! This can only be done by YOU. We must ACT NOW to ensure that everyday grieving Americans aren’t left behind.

Let your voice be heard. 

Learn more about how you can share with others and be the change: https:///waysandmeans.house.gov/share-your-story-paid-leave-and-child-care