“I get up and I’m like, ‘Today I’m going to do this.’ Momo couldn’t stay here for me, but I’m doing my best to walk it out in a way that maybe a young person that I talk to or they see me smiling even if I’m crying and just keep going and maybe it’ll make a difference. Sometimes I wonder because if we didn’t make a difference in my own child’s life…”
— Judy
Evermore is dedicating this Father’s Day week to bereaved dads who will always be fathers.
Kelly Farley and Barry Kluger met because of a horrible coincidence: They knew what it was like to mourn a child.
For Kluger, it was his 18-year-old daughter Erica, who died in a car crash in 2001. For Farley, it was two children — his daughter Katie, who died by miscarriage in 2004, and his son Noah, who was stillborn in 2006.
The two met several years later after Farley launched a blog that covered his own experience grieving the death of his children, and Kluger invited him on his talk radio show.
As they chatted about what they both had been through, the two fathers started talking about finding an issue they could work on together. That discussion eventually turned to better bereavement leave for parents mourning the death of their child. Soon, they became the dads behind the Parental Bereavement Act.
“Your employer will give you three or five days of bereavement leave, if you’re lucky. That’s just not enough time. You bury your child, and you’re expected to get back to work the next day. We didn’t think it was realistic.”
Right now, the Family and Medical Leave Act gives eligible employees 12 weeks of unpaid leave to care for a newborn or a sick family member, but not to grieve a child who has died. And private and public employers aren’t doing much better. An industry survey shows that 69 percent of employers give parents just three days off after a son or daughter dies. It’s barely enough time to plan a funeral.
In 2011, Farley and Kluger crafted the Parental Bereavement Act, an update to the Family and Medical Leave Act that would allow parents to qualify for unpaid leave when a child, who is under the age of 18, dies. Twelve weeks, they say, is not enough time to fully mourn a child, but it’s a start.
“It gives them time to assess what has happened to them and, maybe, start the grieving process,” Farley said.
By the summer of 2011, the two dads got some great news. Sen. Jon Tester, a Democrat from Montana, introduced the bill in the Senate. They hoped for quick action, which hasn’t come. But the bill has continued to get backing from lawmakers through the years. And, in February, it received bipartisan support in the U.S. House and U.S. Senate.
Supporters said it was time to help grieving parents. Senator Martha McSally, a Republican from Arizona and a co-sponsor of the bill in the Senate, stated in a news release:
“Parents coming to grips with the loss of a child should not have to worry about anything other than taking care of themselves and their loved ones,” said . “It is critically important to ensuring mourning parents have the peace of mind to be able to take the time they need while going through the grieving process.”
Representative Don Beyer, a Democrat from Virginia and a co-sponsor of the House bill, added in his press release:
“Expanding the FMLA to include parental bereavement is the most compassionate action we can take to do something, no matter how small, to help bereaved families. This legislation is a good start to make a positive change and I’m proud to support it.”
The latest endorsements make Kluger and Farley hopeful once more.
The latest endorsements make Kluger and Farley hopeful once more.
Despite the bipartisan support in both the House and Senate, the two know that they still have an uphill battle. As the country grapples with an opioid epidemic, mass shootings and other pressing issues, helping bereaved parents isn’t top of mind for many.
Kluger and Farley continue to build momentum and support, and say that a couple of weeks don’t go by without another senator or another representative signing on.
“Bereavement leave is something where people say, ‘That’s a pretty good idea,’ but … the passion is not there,” said Kluger, who wrote a book about his daughter and her death called “A Life Undone: A Father’s Journey Through Loss.”
“I made it through the dark tunnel, and it is my responsibility to be an advocate for parents who follow in our footsteps,” said Farley, who now travels the country to work with grieving fathers and is the author of the book, “Grieving Dads: To the Brink and Back.”
To move the bill forward, Farley and Kluger are encouraging more people to speak out. So far, through an online petition, more than 120,000 people have sent messages to their lawmakers in support of the bill. There, parents also are sharing their own experiences after the death of a child.
“Three years ago we lost our first born. My husband received one weekend, then back to work,” wrote one mother. “How can you return to work when your mind and heart are somewhere else completely. We needed more time!”
Another mother wrote that her child’s father was fired for missing work to pick up their son’s ashes.
The two dads also encourage people to directly contact their representatives and share their own stories about why they support the bill, so that it gets the attention it deserves.
“I’m not discouraged,” Kluger said. “But I’ve learned the way it works. It’s not a sprint, it’s a marathon.”
There are times in which an entire life can change in a moment. It may come in the form of an anxiously anticipated milestone: graduation, marriage, or the birth of a child. But there are darker, unimaginable tragedies we often refuse to consider – tucking them into the deepest recesses of our minds because they are too painful, too life-altering. For Deana Martin that moment came on a busy Friday afternoon.
Going through routine updates during her weekly supervising meeting, Deana’s phone began to ring. It rang again, and again, and again, incessantly. Continuing to devote her attention to work, Deana reviewed department finances, all the while noticing an unknown number with her hometown Indiana area code. Given the relentless nature of the caller, Deana acquiesced and picked up the phone.
The news was devastating: she had lost not one, but both of her children. But the death of her children was just the tip of the iceberg. As for many parents, a glacier of change was underway.
In the days following her unimaginable loss, she fought through indescribable pain – all the while planning funerals; making accommodations to become the primary caregiver for her young granddaughter; informing the employers, family members, and friends of her deceased children; and attempting to comfort those around her. It was during this time she learned her employer had given her two weeks of bereavement leave – one for each child.
Today, child death is not a qualifying event for job protection through federal legislation known as the Family Medical Leave Act (FMLA). As a result, bereaved families have no choice but to negotiate leave with their individual employer – at a time when they are least emotionally and mentally capable of doing so. Oregon and Illinois are the only states in the nation to require employers to allow bereaved families to take two weeks of unpaid leave; Illinois provides additional leave – up to six weeks – for the loss of multiple children. According to one industry survey, 69 percent of employers grant three days of paid bereavement leave following a child death – not enough time to plan a funeral. As a nation, we can do better for our families, especially in a time of significant crisis.
Those two weeks passed in a haze for Deana: burial arrangements, negotiations with insurance companies, building a new life for the granddaughter who had been robbed of her mother and uprooted from the only surroundings she had ever known. With compassion and care, Deana persevered.
Deana returned to work, yet she did so in body only. Her mind, heart, and health would not recover. It took years for her to realize that her life was forever changed. Her grief was severe and enduring: chronic depression, anxiety disorder, insomnia, panic attacks, and a condition known as complicated or prolonged grief syndrome – all symptoms many families endure for decades, if not a lifetime. Ultimately, Deana was released from her job by an employer who was unable to support or assist in her recovery.
Deana still struggles to define herself and her purpose in the aftermath of her loss: “My children were and are my life. My identity as a mother and a career woman disappeared. I struggle with the question, Who am I now?“
As she rebuilds her life, she focuses on caring for her granddaughter and working to help other families who have suffered the death of a child. “I know I am where I am meant to be in life and that my experiences are more normal than not,” says Deana. “I know it will still take time to rebuild and sift through the rubble of my shattered life of twenty-five years. In time I will build a new foundation and new coping skills. There is one thing I know without a doubt, and that is that I have to give of myself to society, for I have a heart and compassion for other hurting parents like me.”
“I never in a million years imagined myself telling my baby to let go. This is the baby that I fought to keep in so she wouldn’t be born early, but…”
— Kimmie