Better Together: Shaping Tomorrow’s Bereavement Care Research

Better Together: Shaping Tomorrow’s Bereavement Care Research

Evermore, a nonprofit dedicated to making the world a more livable place for all bereaved people, invites you to Shaping Tomorrow’s Bereavement Care Research to convene bereaved individuals, clinicians, researchers, and system-level leaders, including representatives from health systems, payers, professional associations, and community organizations, to advance the future of bereavement research.

Setting the Context

For too long, bereavement research has failed to give bereaved people a voice and incorporate the real-world factors that matter to grieving people, especially as it relates to their health and well-being. The narrow focus on what’s “wrong” with us and why we haven’t adapted to our loss on a specific timeline simply does not resonate with a large portion of people’s lived experience. Without input from those living with grief, researchers cannot know the most important research questions to ask and what kinds of care models and interventions should be developed.

Over the last 18 months, Evermore, with financial support from PCORI, has established the Lived Experience Bereavement Research Network (LEBRN) to create guiding principles for how researchers should engage with bereaved individuals, as well as what our more pressing research questions are to guide the future of bereavement research.

During the meeting, we will review and discuss LEBRN’s developed principles and research agenda, further exploring today’s research and practice landscape by identifying barriers and opportunities for integrating effective bereavement care into systems, ultimately to lay the groundwork for future patient-centered comparative clinical effectiveness research.

We hope you will join us!

Questions? Contact Rene Harrell, Senior Manager of Science & Trends at rene@evermore.org

This convening is funded through a Patient-Centered Outcomes Research Institute® (PCORI®) Eugene Washington PCORI Engagement Award (#49140).

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Better Together: Shaping Tomorrow’s Bereavement Care Research

Shaping Tomorrow's Bereavement Care Research