Join Evermore’s Lived Experience Bereavement Research Network!
For too long, bereavement research has failed to give bereaved people a voice and to incorporate the real-world factors that matter to grieving people, especially to their health and well-being. The narrow focus on what’s “wrong” with us and why we haven’t adapted to our loss on a specific timeline simply does not resonate with a large portion of people’s lived experience. Without input from those living with grief, researchers cannot know the most important research questions to ask and what kinds of care models and interventions should be developed.
Evermore, with financial support from PCORI, has established the Lived Experience Bereavement Research Network (LEBRN) to do just that. LEBRN will bring together people with varied backgrounds and expertise, including people who have experienced bereavement themselves — bereaved parents, children, siblings, spouses, and community leaders — alongside bereavement care providers and researchers. Over the next two years, we will identify how to best engage with bereaved people during research endeavors and we will recommend research questions, from the perspective of lived experience, to guide the future of bereavement research.
As part of LEBRN, Evermore is engaging all bereaved people who would like to share their experiences, opinions, and insights to inform future bereavement research.
